The highs and lows of a chronic illness are extreme. I was so thankful to find a cure for my debilitating allergy attacks, hives, asthma (I haven't used my breathing tea since I went mammal free) and middle of the night mild anaphylaxis...its been great. I definitely think I have alpha gal.
But in my excitement I thought maybe some of my other symptoms might go away too and I find myself kinda sad today that I still have chronic fatigue.
Today I went on a play date with another home-school mom, it was my first time meeting her and it was awesome. She has a 9 year old who loves to play chess and my 10 year old also loves to play chess. Her son beat mine three times! Reuben had a blast though, he wants to keep trying and playing. But there was my chronic fatigue making it so hard to concentrate. And hard to walk. And hard to keep track of my kids. I just wanted to go home. We stayed 2.5 hours and then I was a couch potato for an hour and now I am making roasted yams, fish and broccoli for dinner.
I think chronic fatigue has been one of my hardest symptoms. It comes, and never with any kind of warning. It stays and then just disappears one day maybe for 24, 36 hours or sometimes a week. It always comes back. Sometimes I start the day okay and by lunch have chronic fatigue...
Today I am trying to focus on the good. I am better! Even a little bit counts! The hard realization that I am still sick is just life, and facing reality is better than trying to ignore it. My life won't look like the life of a person who is healthy. Not everyone is going to understand that, and that's also okay.
I can still have dreams even with a chronic illness. They may be modified, slower dreams, but I can still dream them.
And I can still raise beautiful babies. God's blessings are so evident in my life. He is so good and he has been good to me, too.
What Chronic Illness makes hard: being intimate with my spouse, cooking, cleaning, parenting, homeschooling, going to church, volunteering, going out of my house, laundry, exercising, driving, moving, standing up, concentrating, singing...
What Chronic Illness doesn't make hard (for me): sunsets, warm days, reading books, listening to music, enjoying chocolate, smiling at my husband when he gets home from work, making lists, hugging my babies...
There is still joy to be found even in the hard parts. Thanks be to the Lord!
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